Social media for the Cystic Fibrosis Foundation
Facebook: https://www.facebook.com/cysticfibrosisfoundation
Twitter: https://twitter.com/CF_Foundation
Youtube: https://www.youtube.com/user/CysticFibrosisUSA
Instagram: https://www.instagram.com/cf_foundation/
Social Media Websites
Cystic Life CL: Learn about community driven research and the importance of exercise.
Cystic Fibrosis Research, Inc.: A charitable organizaiton that funds research and provides education.
http://www.cfri.org/home.shtml
Webicin - Cytsic Fibrosis: A site where you can find articles, tips, and resources for CF.
https://www.webicina.com/cystic-fibrosis
ERJ - Open Research: Article on using social media to improve communication for people with CF.
http://openres.ersjournals.com/content/2/1/00015-2016
Cystic Fibrosis Blogs
Patient Safety is a Top Priority in Clinical Research: Blog promoting research for patient safety for CF.
Adult Advisory Council Helps CF Foundation Reach Out To Adults with CF:
Apps
CF GeneE: An educational app for healthcare professionals:
http://www.cfgenee.com/ also found in google play store.
Cystic Fibrosis: Everything you need to know about CF using video, image, and text.
http://manalsoft.com/cystic-fibrosis-app/
CF Chest Physio App: Assists parents who have a child with CF and need to perform chest therapy.
https://play.google.com/store/apps/details?id=com.storyboard.PhysioApp&hl=en
my CF: From medications to symptoms to growth and nutrition, people with CF can track their disease with ease. https://play.google.com/store/apps/details?id=com.mycffree.mycf